lundrs Posted August 23, 2008 Posted August 23, 2008 Our family would like to publicly thank Jim Samia aka Captain Ace for, once again, donating a charter trip for our 2nd Annual golf for MAGIC Foundation in honor of our granddaughter,Devan Hanks.Devan was born with a rare genetic growth disorder called Russell Silver Syndrome.Our family belongs to an organization called The MAGIC Foundation ( Major Aspects for Growth In Children) which has helped us to learn about the syndrome and it's treatment and has introduced us to a huge network of families who are living the same problems as we are. MAGIC covers a huge array of growth disorders besides Russell Silver; Turner Syndrome,McKuen Albright Syndrome,Precocious Puberty, and many more.Our annual golf outing is our way to thank MAGIC for all that they have done for our family. It is because of the kindness and generosity of people like Jim Samia, we were able to raise over $7,000 last year.If anyone would like to learn more about the MAGIC Foundation their website is www.magicfoundation.orgOur granddaughter has her own website called www.devanhanks.comHere you can download our golf registration by going to events on her website. We are desperately seeking golfers to attend.If anyone lives in the Upstate New York area and would like to attend our event on Monday,September 15,2008, please send in your registration now. If you have questions or would like to make a donation please contact our daughter,Rebecca, at Devan's website.There is a place on the registration form to fill out if you would like to sponsor a hole, make a donation, donate an item, register for dinner only, or golf and dinner.Thanks again,Jim! I know that the economy has been difficult for everyone, especially for businesses like your own, yet you still find it in your heart to donate and help us out. Good fishing and God bless.Sincerely,Ron and Maggie Sievert[email protected]
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